Quand le silence est violent
Mots-clés :
Soins palliatifs, fin de vie, violence, éthiqueRésumé
Cet article a pour objectif de discuter comment les fragilités de la communication en soins palliatifs peuvent être comprises comme des formes de violence symbolique. Il s’est construit à partir du contexte des soins palliatifs, en intégrant une vision bioéthique principiste sur l’autonomie du patient dans le processus de mourir et la participation de la famille, ainsi qu’une compréhension de la violence comme négligence des droits de l’autre proposée par Minayo, aboutissant à la configuration de la violence symbolique possible dans ce contexte, tel que l’énonce Bourdieu.
Références
Aguiar, N. (2023). Tomada de decisão compartilhada enquanto estratégia para vulnerabilidade em saúde. Revista Brasileira Bioética, 31, e3609PT. https://doi.org/10.1590/1983-803420233609PT
Andrade, G. B., Pedroso, V. S. M., Weykamp, J. M., Soares, L. S., Siqueira, H. C. H. et Yasin, J. C. M. (2020). Palliative care and the importance of communication between nurse and patient, family and caregiver. Revista De Pesquisa Cuidado é Fundamental Online, 11(3), 713-717. https://doi.org/10.9789/21755361.2019.v11i3.713-717
Ariès, P. (1977). A história da morte no Ocidente. Rio de Janeiro:Francisco Alves.
Association canadienne de soins palliatifs. (2014). Guide des proches aidants: un manuel sur les soins de fin de vie, Ottawa.
Beauchamp, T. L. et Childress, J. F. (2001). Principles of Biomedical Ethics (5e éd.). New York : Oxford University Press, p. 58-64.
Bourdieu, P. (2001). Meditações Pascalianas. Rio de Janeiro: Bertrand Brasil.
Bourdieu, P. (1989). O poder simbólico. Lisboa: Difel.
Bourdieu, P. (1983). Sociologia. São Paulo: Ática.
Bréau, L. (2021). Une approche communicationnelle des conditions contemporaines de la fin de vie en France : interactions dynamiques entre politiques de santé publique, communication hospitalière et pratiques soignantes. Sciences de l’information et de la communication. Aix-Marseille Université.
Cecconello, L., Erbs, E. G. et Geisler, L. (2022). Ethical conduct and terminal care. Brazilian Journal of Bioethics, 30(2), 405-412. https://doi.org/10.1590/1983-80422022302536PT
Cenedesi Júnior, M. A. (2023). Bioethics applied to palliative care: A public health issue. Brazilian Journal of Bioethics, 31, e3532PT. https://doi.org/10.1590/1983-803420233532PT
Coelho, C. B. T. et Yankaskas, J. R. (2017). New concepts in palliative care in the intensive care unit. Brazilian Journal of Critical Care, 29(2), 222-230. https://doi.org/10.5935/0103-507X.20170031
Conti, P. H. B. et Souza, P. V. S. (2021). Bioethics and its theoretical paradigms. Brazilian Journal of Bioethics, 29(4), 716-726. https://doi.org/10.1590/1983-80422021294505
Edwards, J. D., Voigt, L. P. et Nelson, J. E. (2017). Ten key points about ICU palliative care. Intensive Care Medicine, 43(1), 83-85. https://doi.org/10.1007/s00134-016-4481-6
Espíndola, A. V., Quintana, A. M., Farias, C. P. et München, M. A. B. (2018). Relações familiares no contexto dos cuidados paliativos. Brazilian Journal of Bioethics, 26(3), 371-377. https://doi.org/10.1590/1983-80422018263256
Estella, Á., Saralegui, I., Sanchiz, O. L., Hernández-Tejedor, A., Camps, V. L., Martín, M. C., Pericas, L. C., Burralló, N. M., Nuñez, M. R. et Monzón, J. L. (2020). Update and recommendations in decision making referred to limitation of advanced life support treatment. Medicina Intensiva, 44(2), 101-112. https://doi.org/10.1016/j.medin.2019.07.006
Ganz, F. D. et Sapir, B. (2019). Nurses’ perceptions of intensive care unit palliative care at end of life. Nursing in Critical Care, 24(3), 141-148. https://doi.org/10.1111/nicc.12395
Gayoso, M. V., Avila, M. A. G., Silva, T. A. et Alencar, R. A. (2018). Comfort level of caregivers of cancer patients receiving palliative care. Revista Latino-americana de Enfermagem, 26, e3029. https://doi.org/10.1590/1518-8345.2521.3029
Gulini, J. E. H. M. B., Nascimento, E. R. P. D., Moritz, R. D., Rosa, L. M. D., Silveira, N. R. et Vargas, M. A. O. (2017). Intensive care unit team perception of palliative care: The discourse of the collective subject. Revista da Escola de Enfermagem da USP, 51, e03221. https://doi.org/10.1590/S1980-220X2016041703221
Hill, S., Dawood, A., Boland, E., Leahy, H. E. et Em Murtagh, F. (2022). Palliative medicine in the intensive care unit: Needs, delivery, quality. BMJ Supportive and Palliative Care, 12(1), 38-41. https://doi.org/10.1136/bmjspcare-2020-002795
Kovács, M. J. (2005) Educação para a morte. Psicologia: Ciência e Profissão, 25(3), 484-497. https://doi.org/10.1590/S1414-98932005000300012
Machado, J. C., Reis, H. F. T., Sena, E. L. S., Silva, R. S. B., Rita, N. S. O. et Vilela, A. B. A. (2019). The phenomenon of the conspiracy of silence in patients in palliative care: An integrative review. Enfermería Actual de Costa Rica, (36), 92-103. https://dx.doi.org/10.15517/revenf.v0i36.34235
Maingué, P. C. P. M., Sganzerla, A., Guirro, U. B. P. et Perini, C. C. (2020). Bioethical discussion on end of life patient care. Revista Brasileira de Bioética, 28(1), 135-146. http://dx.doi.org/10.1590/198380422020281376
Marinho, S. et Arán, M. (2011). Care practices and normalization of conducts: Some considerations on the sociomedical management of “good death” in palliative care. Interface, 15(36), 7-20. https://doi.org/10.1590/S1414-32832010005000039
Martineau, I. et Pevenage, I. V. (2024). Soins palliatifs et soins au grand âge : des univers à réconcilier autour d’une éthique de la vulnérabilité. Soins gérontologie, 29(169), 24-29. https://doi.org/10.1016/j.sger.2024.06.006
Martins Rodrigues, M., da Silva Oliveira, J., Ernesto Silva, A., Souza da Silva, R., Constâncio, T. O. S., et Vieira, S. N.S. (2022). Assistance to patients eligible for palliative care: the view of professionals from an Intensive Care Unit. Revista da Escola de Enfermagem da USP, 56:e20210429. https://doi.org/10.1590/1980-220X-REEUSP-2021-0429en
Minayo, M. C. S. (2006). Violência e saúde. Rio de Janeiro: Editora Fiocruz. Coleção Temas em Saúde, 132 p.
Noome, M., Dijkstra, B. M., van Leeuwen, E. et Vloet, L. C. (2016). Exploring family experiences of nursing aspects of end-of-life care in the ICU: A qualitative study. Intensive and Critical Care Nursing, 33, 56-64. https://doi.org/10.1016/j.iccn.2015.12.004
Pollak, K., Jones, J., Lum, H., De La Cruz, S., Felton, S., Gill, A. et Kutner, J. (2015). Patient and caregiver opinions of motivational interviewing techniques in roles-played palliative care conversations: A pilot study. Journal of Pain and Symptom Management, 50(1), 91-98. https://doi.org/10.1016/j.jpainsymman.2015.02.003
Schneiderman, L. J., Jecker, N. S. et Jonsen, A. R. (2018). The abuse of futility. Perspectives in Biology and Medicine, 60(3), 295-313. https://doi.org/10.1353/pbm.2018.0001
Seaman, J. B., Rak, K. J., Carpenter, A. K., Arnold, R. M. et White, D. B. (2022). Intensive Care Unit clinicians’ perspectives on achieving proactive interprofessional family meetings. American Journal of Critical Care, 31(2),129-136. https://doi.org/10.4037/ajcc2022719
Tong, W., Murali, K. P., Fonseca, L. D., Blinderman, C. D., Shelton, R.C. et Hua, M. (2022). Interpersonal conflict between clinicians in the delivery of palliative and end-of-life care for critically ill patients: A secondary qualitative analysis. Journal of Palliative Medicine, 25(10),1501-1509. https://doi.org/10.1089/jpm.2021.0631
Wiegand, D. L., Cheon, J. et Netzer, G. (2019). Seeing the patient and family through: Nurses and physicians experiences with withdrawal of life-sustaining therapy in the ICU. The American Journal of Hospice and Palliative Care, 36(1), 13-23. https://doi.org/10.1177/1049909118801011
Téléchargements
Publié
Numéro
Rubrique
Licence
© Eduardo Tavares Gomes 2026
Cette œuvre est sous licence Creative Commons Attribution 4.0 International.